CF | IVs Time Again!

Sick day selfie with Freddydog

Hi! How are you? I don't even know how anyone is because I haven't read blogs for a bit (my bloglovin' feed is ridiculously long now!) so do tell me...I wanna catch up!

I miss reading blogs but I've basically felt too pooped to even sit on the laptop, reading is too much effort haha. I've mainly been bingewatching The Sopranos because it's only on the Sky iplayer thing until October and there are 86 episodes to get through! My brother has the boxset but he broke the disc with the last episode of Season 3 on it so I just have to get through three seasons and then there's no rush to watch them all in time. It's so good but I did watch a little too much and now all my thoughts in my head are in their accents and there's a lot of swearing going on in my brain too. Like when I'm reading this back it's like 'I miss reading blawgs.' A bit annoying, I don't understand my weird mind!

I definitely went off on a tangent there but I do have an excuse for being such a couch potato though. I got some cold thing that's gone to my chest so now I have to start IVs on Thursday even though my last dose was only just over a month ago. I usually don't care because that's just life but this is like the worst week to be ill. My CF nurse isn't there this week, my parents are away and this weekend is one I've been looking forward to for ages! It's rare that me and my two best friends all get to be together and we've had a big night out planned for ages for my friend's birthday and now I'm ruining it because I'm going to be too tired and dopey from IVs to go out properly and no cocktails for me either. I just feel so bad because it's my best mate's birthday thing and she's so nice and understanding because she's saying how we don't have to go out but still. It makes me feel so guilty when my CF affects other people, no one ever makes me feel like a burden or anything but I just think it's not fair that it should affect them too. Especially my Mum, so much of her life revolves around looking after me. I mean I'm not a baby, I can look after myself but when I'm ill like now for instance she does the big things like taking me to hospital and the little things like holding my hair back when I'm throwing up from coughing so hard (which happens like at least twice a day...noiiiiice.) She's a massive help when I'm on IVs because she'll do the night time or morning dose so I can rest. Everyone says their mum is the best but mine really is, she deserves like a trophy or something. 

I've been constantly ill for a couple of months now, I mean I'm never 'well' but this is like ill ill. I feel too rubbish to do anything most days apart from all my medicines and physio plus extra to try and feel better which is really tiring and time consuming. I've decided to try and put thoughts of a job out of my head for the time being, I'm no good to any employer right now anyway because I'll just be calling in sick all the time! And I'm lucky enough to not need to worry about money because I have savings and things for rainy days such as these. I work because I want to not because I need to (so anyone that wants to think I'm being lazy or workshy or whatever can ssh because I loved having a job, even if it was just a silly part time shop thing.) Right now I need to concentrate on getting better and keeping my lungs as well as possible...my lung function has frequently been low (like between 30-40% for anyone with CF reading) and I think that with a lot of hard work I can get it back up, I mean last summer my highest was 50 something percent which was brilliant because I hadn't seen numbers like that for years! To get back to that would be amazing so that's my goal even though I don't think it'll be easy. 

But aside from feeling ill I'm still feeling jolly! There's lots of good things to be happy about, like my driving lessons (even though I had to cancel this week) and my latest plan is to make Christmas cards for my Etsy store to sell for the CF Trust this year. I need to work it all out and that but I'd love to raise some awareness and money towards funding new research! I think I'll probably not blog for a week or so because IVs will most likely zombify me but I'll probably catch up on my blog reading at some point even if I feel to knackered to comment.

Until then, have a fab week! 

The View From The Shard

So for my friend's birthday my present to her was a trip to The Shard, which is 'Western Europe's tallest building'. After a delayed train journey because of some wally in a tree and a bite to eat at Cafe Rouge (I had the Caesar salad...why? Should've had a big fat burger) we made our way to London Bridge. As you go in you have your photo taken by a green screen and you can purchase a photo of you photoshopped in front of various views from The Shard if you so wish (but I say take your own pics for free when you get up there!) You then take two high speed lifts that make your ears pop and make your way up to Level 72. The glass is floor to, well, nothing because there's no ceiling and my legs were total jelly at first because I'm not the greatest with heights. But after a while I got used to it and it just felt amazing up there looking over the whole of London! I've been on the London Eye before a few times but I say if you're going to do one of the two definitely visit The Shard because basically it pees all over the Wheel. You can see so much more plus you get to stay up there for as long as you want...we were there for a couple of hours! We got there just before sunset so we saw the sun go down which was pretty spectacular and then watched the whole city light up. 

Sorry for the mix of phone and camera pics, my camera died halfway through! I did have loads of photos of me and my friend but I don't think she'd want them on here!

So high you can't even see the top of it!

We were so high that it was kind of hard to see some of the famous places at first, Big Ben looked absolutely teeny. I did see Millwall though! It was so brilliant, at first I didn't get the appeal of The Shard but having visited it now I can't recommend it enough...it really is a fantastic experience! It's made me want to do more touristy London things, when I lived there I totally took it all for granted and didn't make the most of it so now I'm just outside it I definitely appreciate it more. 

Have you ever been to The Shard? What's your fave London attraction?



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